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Down Syndrome in Tanzania- Showing the World Possibility
Well our story is a bit of unique one, in fact I’m pretty sure there are not many like it. I’m Hayley originally from Wales Uk, and in 2008 I traveled to Tanzania for what was meant to be 8 weeks of...
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Harper’s Story- Thankful for a Birth Diagnosis of Down Syndrome
I have often said that I am glad that I did not know while I was pregnant that my Cedar was going to have Down Syndrome. I am glad I did not know because I know me and I would have worried incessantly...
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Cedar Saturday
When I looked back over our last few Cedar Saturday posts I realized that it has been almost 6 months since I have done one of these, how in the world does time fly by that fast??? I’ll tell you how,...
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Charlie and Milo: twins with a purpose
I love this story so much, I love Julie, and her heart that she shares with us all as she wrestled not only with her fears of Down Syndrome but also of whether she and her husband would be able to...
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Choosing to Homeschool a Special Needs Child
Choosing to Homeschool a Special Needs Child I always get so excited to find another family who shares my affinity for homeschooling, especially when it involves choosing to homeschool a special needs...
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Preschool and Down Syndrome- One mom’s decision to homeschool
It’s no secret that we homeschool our children, but when the topic of Cedar comes up with most professionals, we are routinely advised that all state early intervention services will stop on his 3rd...
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Breastfeeding Your Baby with Down Syndrome- 5 tips
Breastfeeding can be hard work. This is true under the best of circumstances as it requires patience, time, and a concerted effort. When you have a child born with Down Syndrome, the patience,...
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Special Needs Parents; I felt sorry for them before my son was born
Before My Son Was Born, I Felt Sorry for Special Needs Parents I used to be that mom. The mom who pitied those special needs parents. I would be in the grocery store and I would see the child with...
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Fly like a Jett: A Prenatal Diagnosis of Down Syndrome
Every woman finds out about the diagnosis in one of two ways, either during pregnancy screens, or at birth. Adrienne found out via a Prenatal Diagnosis of Down Syndrome, meet her and her beautiful...
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Teaching Children with Down Syndrome- 10 Tips from a Former Teacher
Sending your child with Down Syndrome off to school can be a real challenge, but here are 10 tips from a former teacher turned parent about teaching children with Down Syndrome. This year was hard....
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Welcome to Holland- Interview with Author Emily Perl Kingsley
Shortly after we received Cedar’s Down Syndrome diagnosis, a young lady doing hospital rounds with the physician group shared this poem with me. It was a profound moment, because I felt like the...
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What are SMO and AFO orthotics and how do they help?
One of the challenges, when you are a special needs parent, is learning a whole new language. Seriously, in the world of special needs there are doctors, nurses, and therapists who will throw out...
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Down Syndrome Diagnosis: a Dad’s perspective
A Down syndrome diagnosis can be scary and be concerning at best, but what is it that a dad thinks? Down Syndrome Diagnosis a dad’s perspective helps us see just one of those points of view from...
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The Best Planner for Special Needs Moms
I have had a love affair with the idea of being organized for years, I love planners, I love the way they feel, the way they make me feel ready to take on the day, the way I feel like I can handle it...
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Celebrities and Down Syndrome- Interview with Amanda Booth
Celebrities, in my mind, become endearing when they use their notoriety to spread awareness, give back, and help others. When I first became aware of the model, Amanda Booth, who has a son with Down...
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What does Peanut Butter Falcon mean for Down Syndrome?
With a name like Peanut Butter Falcon one is left wondering what kind of a film this actually could be. I had heard a quiet buzz in the Down syndrome community about an upcoming film where the star...
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I Am Me- The Story Behind One Mom’s Journey
Each of us has a story, an important one that defines who we are and why we do what we do. Some of our stories evolve as we are given twists and turns in life and some of those experiences make us...
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Make an IEP profile
Today was a hard day. I didn’t think it was going to be and I thought I was prepared, but sometimes those salty tears well up when we least expect them. This was the day I received the clinical basis...
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Beautiful Twin Girls and a Down Syndrome Diagnosis
After years of struggling to have a baby, my husband and I found out we were pregnant – with TWINS! We already had a son that we loved more than life itself, but wanted to give him a brother or...
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Getting Pregnant Again after Having a Baby with Down Syndrome
Paige has been featured on the site before, her beautiful girl named Eden showed the world just how well a child with Down Syndrome can learn sign language. However, this time I asked Paige what many...
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